Apr 28, 2010

Fibromyalgia Awareness Time Again

May is the month for fibromyalgia awareness. Many of us are aware of
it all the rest of the time as well. It touches the lives of family,
friends and co-workers.

Imagine waking up in the morning after a short, restless sleep. Your
body aches like the flu is coming on, yet there is no flu.
You can't move your head without feeling stabbed in the neck, and your
lower back aches when you roll over.
You get out of bed and take a pill for pain, have a little decaf, and
wait to feel like a human being. In a couple of hours, you're
already exhausted and need to rest. On top of that, you feel kind of
useless and guilty for not accomplishing nearly as much as you feel
you ought to, and this makes you feel sad. Welcome to a day in my
life when fibromyalgia is in full bloom. It may vary from person to
person, but one thing in common is pain.

Fibromyalgia can cause depression and anxiety. It's what's left after they rule out everything else. I had just about every test imaginable.
There is no cure, just management of symptoms. The cause is unknown.

It can come on alongside another condition, like arthritis or lupus.
I have osteoarthritis in all sorts of places, and am too young for that.

On a good day, I can get some things done. But if I do too much, I
pay dearly the next day.
On bad days I have to ration my energy out to basics, and take naps.
The dust will wait. Prioritizing is important, and things-to-do lists
are mandatory but flexible. I find that I'm becoming more forgetful
all the time, and that does scare me.

As far as I know, most fibromyalgia sufferers do not want pity. But
we'd gladly accept some help with the housework, cooking, a shoulder
massage, or just a friendly visit.

Family comes first, even if it's only a phone call or email. There's
never too much pain to hear news like my son(s) buying a new car or
getting a promotion at work, or to have time with my husband or sing
with my grandson.

Love is not enough. But sometimes it's the best one can do.


Fibromyalgia Awareness Day
May 12, 2010

Fibromyalgia is a chronic disorder characterized by widespread
musculoskeletal pain, fatigue, and multiple tender points. It may
cause sleep disturbances, morning stiffness, digestive disorders,
anxiety, TMJ, cognitive or memory impairment, visual disturbance, and
other symptoms.

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